From Jean Osborne: "Two
Loving, Caring People"
I take this opportunity
to relate two stories about why I got involved in the death with
dignity movement. Stories about two wonderful, loving, caring people
very close to me who died with anything but dignity. With their bodies
full of cancer, they could not be completely anesthetized with any
of the palliative care they received at the end of their lives.
My mother was diagnosed
with pancreatic cancer in December 1993 and died in April 1994. Hospice
nurses came to our home to administer palliative care only in the
last few weeks of her existence and, since they were unable to be
there on a 24 hour a day schedule, there were many times when Mother
would cry out in pain and there was nothing I could do for her. I
was unable to administer drugs intravenously to relieve her suffering
and she was unable to swallow the potent, liquid prescription. She
slipped into a coma and had to be taken by ambulance back to the hospital.
She died approximately five hours later.
The second agonizing death
I witnessed was my significant other of 21 years. He was a retired
Air Force General and fighter pilot, who had proudly served his country
for thirty years. In 1989 he had to have his cancerous vocal chords
removed. For almost nine years he lived a reasonably happy life and
used the voice box apparatus designed for laryngectomy patients. In
1998 his cancer returned and ruthlessly spread throughout his body.
In the end he was unable to communicate due to the fact that he could
no longer hold the voice box to his throat and that device was his
only contact with the world. Because of his special breathing needs,
I was unable to care for him at home, and once again I was a helpless
observer of an excruciating imminent death. This lugubrious event
lasted for ten months and ended by withdrawal of all tubes connected
to his fragile body.
As these two loved ones
were perishing, I made a tacit promise to them that I would do everything
in my power to change the way terminally ill humans are treated. I
believe working with the Compassion & Choices organization is a good
start.
From
Karen Tyner: "The Tip of My Nose"
Call it a strong sense
of my civil rights that brought me to join Compassion & Choices Arizona.
I've always loved that phrase, "all laws stop at the tip of my nose",
and that includes my right to see to my own death if I choose to die
with dignity.
From John Thaxton: "The
Examined Life"
Like any good American,
I grew up unaware of dying and death. These concepts were not part
of public consciousness and were not even really allowable in "polite"
conversation.
But
experience, the best teacher in life, taught me that Death couldn't
be banished. A major injury years ago put me in great pain and made
me realize that I would not want to continue living my life if that
kind of pain were the price. Fortunately an operation put me back
on the path of living well.
A few years later, my mother
died, peacefully at home in no pain, cared for by her daughter, who
was also a registered nurse. I learned to be grateful for my mother's
peaceful death and pondered my own. That led me to do volunteer work
for a hospice, visiting dying patients.
My first and most memorable
assignment was a man called L, a professional truck driver. Dying
caught him on the freeway as he was driving his truck across the country
and let him linger in a hospice in Denver until the end. He was miserable,
angry, harsh, ungrateful, and in denial. He was also in pain and literally
without a relative or friend in the world. Because he was indigent
and friendless, his facility and care were substandard, far below
what I would ever want for myself. The dollar speaks, even in dying.
I sneaked him cigarettes, his one pleasure, for which he never thanked
me. It was unpleasant visiting this lost soul, and he died a lonely
and very sad death, with virtually no control over any aspect of leaving
this world. Again, I learned about dying and death, but this time
from the opposite side of the spectrum from my mother's peaceful death.
The cumulative effect of
these and other experiences illuminated and reinforced my hope to
have a death I could look back on with satisfaction. Above all, I
realized I wanted to die pain-free and with as much control as I could.
I have always tried to live an "examined" life, seeking to make the
best choices consciously and in harmony with my principles.
To have control over my
dying process and death is just a continuation of how I have always
lived. It is simply the last decision in the living process, and we
all should have the right to create and direct the last act. Compassion & Choices supports this basic right and works to create the conditions
that allow for dying with dignity. For this reason, I support CCAZ's
mission and work.
From
Dean A. Myhr: "I Cried and Cried"
Like many of you, I have
witnessed, first-hand, the "dying process" of so many people I have
loved. And how degrading and embarrassing it must be for those who
are in the final stages of that process -- to not have the strength,
the will nor the power to control anything, most importantly, "life
itself". As those I have loved were in that final process, I cried
and cried, not only for losing them from my life, but most importantly
the process that society has dictated to be appropriate and humane!
How sad!!!!!
For the most part, we are
a compassionate society! We are considerate and attentive to the wishes
and needs of others. No individual, religious organization, nor government
has the right to determine our individual desires when it involves
making that final decision, an End-Of-Life-Choice. I applaud and support,
whole heartedly, the goals of this organization.
From Vickie Fischer: "What
Makes People Tick?"
I have been volunteering
for all my adult life. I helped found the Planned Parenthood Chapter
in Bucks Coounty, Pennsylvania. I've helped indigent women in Bucks
Coounty get health care and contraception and family planning information.
I founded the Planned Parenthood "Auxiliary," a fundraising group
and served as President. One of my proudest possessions is the Margaret
Sanger award given to me March 18, 1974 for "recognition of significant
contributions to family planning." I believed whole-heartedly in their
concept that "every child should be a wanted child and a woman should
be able to control her body."
When
my husband and I came to Green Valley, AZ, I decided that my volunteering
days were over. Then in March 1993 I picked up the Arizona Daily
Star and on the front page was an article about a police officer
who went out on a street corner and shot himself in the head with
his service revolver. I've always been interested in history, anthropology,
sociology, and psychology, and anything dealing with people and what
makes them tick. The police officer and his wife were old and ill.
They wanted to die together. They did not want one to be left alone.
They checked into a motel, took their pills and said their good-byes.
That afternoon when the maid came in she found the woman dead, but
the man was still alive. Of course they rushed him to the hospital
and resuscitated him. That was why he went on a street corner and
shot himself in the head!
At the end of the article
they mentioned the Hemlock Society and Dr. John Westover. I, who was
never going to volunteer again, picked up the Tucson phone book and
called John Westover. I asked, "I don't know anything about this Hemlock
Society, could you send me some information?" Within three months
I was on the board, became treasurer and then President of the Southern
Arizona Chapter.
I felt so strongly about
a woman's right to choose and I feel just as strongly about a terminal
competent person's rights to choose when to end their suffering. I
only hope I live long enough to see a law that makes it legal for
a suffering, competent person to quietly, calmly, and with dignity,
end an existence that has no joy, satisfaction, or happiness.
From
Paul Sachs: "Anything but Dignified"
My family has always believed
in hastened death rather than prolonging a life without any acceptable
quality. My brain dead father's life was extended several times despite
his medical power of attorney to the contrary.
My first wife died in pain
from cancer. After cutting off nutrition she survived for over a week.
She never left her bed in over a month. It was anything but dignified.
From V. J. Plummer:
"Bow out Gracefully"
As a young dancer, I watched
older dancers suffer because they hadn't planned well. Their embarrassment
was almost contagious. I promised myself that I would
'bow
out gracefully'. I specifically promised myself that I would leave
show business when I began to appear to be 30 years old. Dancers,
similar to athletes, are considered to be 'over the hill' once they
are about 30 years old.
Little did I realize what
a valuable lesson I was cultivating -- one of the very few important
lessons I was able to learn from others rather than having to experience
the agony of the lesson myself. I learned to be able to apply the
principle of "bowing out gracefully" to other activities
in my life.
At the age of 32, I unexpectedly
looked into a mirror and saw the 30-year-old-looking woman I had been
waiting to see. I gave myself one year to find another occupation.
One year later (to the day) I raised my hand and was sworn in to the
Woman's Army Corps. I changed costumes.
A few years before the
20-year anniversary of my military service, I analyzed the pro's and
con's of continuing my military service beyond 20 years. As an older
female in a male-dominated institution, I decided, again to "bow
out gracefully". I tired of over-compensating. Whether or not
I could continue to prove that I was physically fit became
less important than whether or not I wanted to continue to
prove that I was physically fit. "Bowing out gracefully"
was an easier decision than it had been as a dancer.
The ethical stance of the
Compassion & Choices philosophy is compatible with my personal life
stance. Quality of life is most important to me. I had no choice about
how I entered life. I do have some choice in how I exit life. More
than anything, though, I hope that I have the courage, foresight,
and sense of timing to "bow out gracefully".